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| Version | User | Scope of changes |
|---|---|---|
| May 4 2009, 5:35 AM EDT (current) | abancroft1 | 5 words added |
| Apr 10 2009, 6:13 AM EDT | abancroft1 |
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Page created 8 April 2009
I apologise for taking so long to update Jack’s website but the truth is we have been having the time of our lives!
Since attending the Son-Rise start Up Program in January, my dad has worked really hard and got Jack’s playroom ready for us and I officially started Jack’s Son-Rise Program on Saturday 21 February 09.
Jack’s progress so far has just been phenomenal ! I have been working with him for one to two hours in the evening after school and three to four hours on a Saturday and Sunday.
Just in one week of starting the program Jack said three words clearly (Mum, door and Hiya) he has learnt to request things from the shelf by pointing and attempting to say a word, he puts his own socks on and can fasten a zip and his eye contact improved immensely!
The first time I heard him say “Mum” clearly was in the waiting room at our local vets, he went to the opposite side of the room and started shouting “Mum” at the top of his voice, I think I went into shock and sat with my mouth open, everybody was looking at me as if to say ‘are you going to tell him to be quiet?’ NOT A CHANCE! The following day he came running out of school shouting “Mum” and gave me a big hug and a kiss.
In school they can’t quite believe how well he’s doing, it’s a regular occurrence now that Jack’s teachers come out at the end of the day to tell me how well he has done. He has started saying “Yes”, “No” and “More” to express what he wants, he can request things from the other children by looking into their eyes and pointing to what he wants, and his eye contact has improved so much that he was able to follow an instruction from his teacher through a closed window.
When I picked Jack up from school last week he was out in the play ground, he had learnt to ride a bike on his own and was peddling around with the biggest grin from ear to ear. I thought I would burst with pride! As you can imagine he has been smothered with kisses.
He interacts so much better now and seems to really enjoy interactive games. Just last night in his playroom we sat opposite each other singing ♫ Heads, shoulders, knees and toes ♫ and when it came to eyes Jack pointed to my eyes and said “eye”. He roared laughing when we played tickling games and through his laughter managed to say “No don’t”.
Not too long ago Jack’s only form of communication was crying and dragging you to tell you what he wanted, now he can say approximately 10 words clearly, and he is such a happy little boy. He has even started to sleep all night every night!!! (Halleluiah)! He is just so much happier and content.
I absolutely love our playroom sessions the interaction we have is priceless and is even better than I thought it would be, it’s that special time when nothing else matters in the world. I can imagine in years to come I will be saying “Come on Jack lets go in the playroom” and he will answer “Mum I’m 21 I’m going for a pint with my mates” What will I do?????
Like many parents when I received Jack’s diagnosis I was faced with a long list of things he would never do. He may never speak, he won’t be able to form relationships, he will have behavioural problems, incontinence problems the list was endless and the grief you feel when you hear what is predicted for your child is indescribable. Jack is already proving everybody wrong and he does something every single day to make me the proudest mum alive!
We have just had a Son-Rise Child Facilitator visit us for the weekend (Barbara Balla) she spent six hours a day in the playroom with Jack and allowed an hour a day to answer questions from myself and a team of volunteers who will very soon be working with Jack in his room. It was a great weekend, we all learnt so much from Barbara and Jack had a brilliant time. We are hoping to have Barbara visit again very soon.
My next round of Son-Rise training is in May. It’s a one week training course in London (New Frontiers) and I can’t wait. Jack is going from strength to strength!!
Son-Rise
The Miracle Continues...
